Mark Tami MP Shows Support for CRY
The Leader, 4th July 2019
MP of Alyn and Deeside Mark Tami showed his support for Cardiac Risk in the Young (CRY), attending the charity's first ever 'drop in' session at Portcullis House along with 50 other MPs. The event was hosted by Kevan Jones MP, a long-time supporter of CRY and Chair of its All-Party-Parliamentary Group (APPG).
“It really does despair that so many young, supposedly fit people suddenly die from an undiagnosed heart defect,” Mr Tami said.“I was one of the first MPs to sign a pledge to support a National Strategy for the Prevention of Young Sudden Cardiac Death to help save young lives and it is disappointing that this has still not happened. It was good to welcome CRY to Parliament, I only hope that now we can begin to make serious progress on this.”
171 MPs have now signed the pledge to support a national strategy for the prevention of sudden cardiac death. CRY's Chief Executive, Steven Cox stated: “It was very encouraging to welcome so many MPs to our event at Portcullis House and to update them on our campaign. Many of the MPs talked about the impact young sudden cardiac deaths have had on their constituents and the communities they represent. Some had very personal stories of the devastating impact of these tragedies. We are continuing to urge all MPs to help establish a national strategy for the prevention of young sudden cardiac death to ensure the government acts to prevent the hundreds of deaths of young people each year from these undiagnosed cardiac conditions.” Read More
Fundraising Couple See 98 Students Receive Heart Screenings at Skegness School in Memory of Son Craig
Skegness Standard, 1st June 2019
Kay and Paul Rawlinson lost their 18 year old son Craig to an undiagnosed heart condition in 2012. Since then, the couple have been campaigning, raising funds and awareness, to bring heart screenings and defibrillators to the Skegness area. Recently, as a result of their efforts, 98 pupils at Skegness Grammar School received heart screenings through the charity Cardiac Risk in the Young (CRY). “On the Saturday 98 children were screened, which starts with an ECG, a quick non invasive test, with if necessary, a further echocardiogram taken on the same day to provide further clarity or reassurance," Kay stated. “Of those 98, 12 have been sent for further referrals, so obviously the screening has proved a success in picking up some, until now, unknown problems.” Read More
Mum Takes on Heart of London Bridges Walk to Raise Funds for CRY in Memory of Daughters
Lancashire Post, 1st July 2019
Viv Christopher lost her daughter Katrina in 2005 and then lost another daughter, Cheryl, in 2012. Both young women died in their sleep of undiagnosed heart conditions. Following their deaths, Viv set up a memorial fund with Cardiac Risk in the Young (CRY) in order to fund heart screenings for young people in her local area. Recently, in order to raise money for the fund she took part in the annual CRY Heart of London Bridges Walk which saw her walking five and a half miles across the city.
“This walk happens every year," Viv said. "All the families and friends of loved ones who have passed away meet together and we do the walk. Everyone has photos of their loved ones on their t-shirts and it is very emotional. We walked, taking in places like the London Bridge, Tower of London and St Paul’s Cathedral. It is a beautiful walk and we chat and reminisce about our loved ones." She added: “I walk in memory of my precious daughters Katrina and Cheryl and in doing so, it helps to raise awareness."
Of the money she's raised thus far Viv said: “It is an absolute shock to me how much money has been raised. People have been so kind and I want to thank everyone who has supported me, especially all the friends and family who walked along side us in memory of our girls. I really appreciate it. All the money will go towards vital research and heart screenings through CRY. So far, the memorial fund has raised £46,000, which is absolutely amazing." Read More
Secondary School Teacher Runs to Raise Funds for CRY in Memory of Brother Who Died of an Undiagnosed Heart Condition
Evening Express, 30th June 2019
Having succeeded in her personal goal of losing weight, secondary school teacher Caitlin Garrett has set herself a new goal of taking on the 10k Simplyhealth Great Aberdeen Run. “I decided to challenge myself to a 10k and signed up to the Great Aberdeen Run. As it’s my first race, the idea of taking part as part of the AFC Wave seemed like the perfect fit,” she said. “I’ve also signed up for the Scottish Half Marathon in September so the 10k is the ideal stepping stone for that. I’m aiming to complete the Aberdeen run in under an hour, but as it’s my first 10k, I’m mainly just looking forward to enjoying the occasion.” Caitlin will run both races in memory of a school friend and her brother who passed away of an undianosed heart condition, with the money she raises going to Cardiac Risk in the Young (CRY). Read More
16 Year Old Heart Disease Survivor Cycles Around Isle of Wight to Save Lives
Chichester Observer, 30th June 2019
At 13, following a football match, George Ashby went to his mother's surgery and had an impromptu heart test. His mother, Amelia, discovered a 'massive murmur' and he was diagnosed with a potentially fatal heart disease. Thus he was able to receive the life saving surgery he urgently needed. Now, 16 year old George and his mother have cycled 73 miles around the Isle of Wight in the hope of saving the lives of other young people with undiagnosed heart conditions. “It was a really good experience," said Amelia. "It was hard work. People recognised us and were cheering us on. It should have been 66 miles but we got lost and did an extra seven. It took about seven hours of cycling.” George added: "We had a lot more help than we were expecting. It was really hilly but it was an amazing experience.”
George and Amelia aimed to raise £2,500 but have ended up raising £3,267. These funds are to be donated to charity Cardiac Risk in the Young (CRY) and go towards their heart screening events for young people ages 14-35. “It shows that people do care," said George. "When it happens to you, you realise it is a serious problem. I hope that I have made a difference and perhaps saved someone’s life.” Before he set off on his ride on the 21st of June he said : "I want to increase awareness because every week, 12 young people die from some undiagnosed heart disease. I am incredibly grateful to be here today and now I want to help other people live through their undiagnosed heart condition.” Read More
Father Raises Awareness in Tribute to Son, Ben Hammond, in Week of What Would Have Been His 18th Birthday
Kent Online, 28th June 2019
In the week of what would have been his son's 18th birthday, Steve Hammond has chosen to use his voice to raise awareness of death due to undiagnosed heart conditions in order to spare other families the pain his own had to endure. In July of 2016, Steve's son, Ben, passed away just over a week after his 15th birthday. After a day cycling with friends, he complained of feeling sick and later that night was admitted to hospital where he died of an undiagnosed heart condition. "It would have been Ben's 18th birthday on June 24 and we should have been celebrating him becoming an adult," said Steve. In a message to other parents, he added: " Ben was fit and active, so don't assume that just because your children appear fit and healthy it means there is nothing wrong, but with a simple test a potential problem could be solved and a life saved."
After Ben's death Team Ben Hammond (TBH) was established to raise funds for Cardiac Risk in the Young (CRY) in order to provide free heart screenings tests to young people ages 14 - 35. Thus far, TBH have raised thousands for CRY through various fundraising activities including marathon runs, cake sales and beer festivals; funding screenings at Homewood School in Tenterden. Steve revealed that, at first, he thought that raising the £2000 needed for a place in the London Marathon would prove challenging. However, the marathon fundraising page set up by TBH runners Phil Sweatman and Nick Vincent raised £6150 in donations and within 6 months the team had amassed £8500 with which to fund their first screening event with CRY. In the first two screenings at the Homewood School where 198 young people were tested, eight of them were referred for further testing after having been discovered to have previously undiagnosed heart conditions.
"This made all our efforts seem worthwhile; to think that we had possibly saved lives through our fundraising and that it would mean that other families wouldn't have to go through what myself, Sheralyn, Archie [his wife and younger son] and our extended family and friends, not forgetting Ben's friends had to go through," said Steve, adding: " "We didn't know these simple tests were available and I certainly wish we had Ben checked out, but it's too late now that's why, for Team Ben Hammond, raising awareness is just as important as raising funds." Read More
MP Lends Support to Cardiac Risk in The Young
The Leader, 28th June 2019
MP for Delyn, David Hanson, attended an event in support of charity Cardiac Risk in the Young (CRY) in show of his support to their campaign for there to be a national strategy for the prevention of young sudden cardiac death. This event, the charity's first 'drop in' session, was held at Portcullis House and hosted by the Chair of CRY's All Party Parliamentary Group (APPG) Kevan Jones MP. Around 50 MPs attended the event and thus far 171 MPs have signed a pledge to support CRY's campaign. "It is of the utmost importance that we establish a national strategy for the prevention of young sudden cardiac death. It will help us prevent hundreds of deaths of young people each year from these undiagnosed cardiac conditions," said Mr Hanson. Read More
Mother and Son Fundraisers Walk in Support of CRY
Oswestry and Border Counties Advertiser, 28th June 2019
Hazel Wakefield and her son Jaime took part in the Cardiac Risk in the Young (CRY) 'Heart of London Bridges Walk' to raise funds for the charity. Over 15,000 people took part in the walk in memory of loved ones, raising awareness of the fact that 12 "fit and healthy" young people pass away every week in the UK due to young sudden cardiac death (YSCD). Read More
Staff at UKCM Donate £5,000 to CRY in Memory of Aaron Dixon
Winsford Guardian, 27th June 2019
Deborah Dixon was told her 23 year old son Aaron might have lived if he had gotten an ECG test when he had gone into hospital a few years earlier after experiencing black outs. Now, his death has inspired the staff at UKCM, container refurbishment company, to raise and donate £5,000 to Cardiac Risk in the Young (CRY) in Aaron's memory. These funds will go towards hosting CRY heart screening events for young people between the ages of 14 and 35. “I want to keep Aaron’s memory alive and that is why I have set up a memorial fund within CRY," Deborah said. "All the money I raise is used to fund screening days as I want to help save young people. No parents should have to go through the loss of their child."
Chief Executive and Founder of UKCM, Emma Elston MBE stated: “From the entire team at UKCM, we are delighted to contribute towards such a valuable and life changing charity. Through Deborah’s sheer hard work and determination, she has now funded screening for over 2,500 young people in schools and community spaces across Cheshire. We wish her the best of luck in her ongoing fundraising endeavours.” CRY's Chief Executive Steven Cox said: “The support of UKCM means a great deal to us and will help us to continue our campaign to reduce the number of young, sudden cardiac deaths and the heartbreak that follows such a tragedy. It is only through the generosity of our supporters that CRY is able to offer its various services and enable more young people to be screened across the country.” Read More
17 Year Old Student Fundraises for CRY Heart Screening
Monmouth School for Girls, 25th June 2019
Sixth Form Student, Elinor, has launched the 'Hartbeat' campaign to raise funds for Cardiac Risk in the Young (CRY) after her cousin, Frank, was diagnosed with a heart condition at a CRY screening financed by a memorial fund. “Frank’s diagnosis, although devastating, has potentially saved his life,” Elinor said. She aims to raise £5,000 in order to hold another CRY screening in Monmouth for 100 young people. “CRY is a vital charity, especially to sporty youngsters,” said Elinor. “I would like to extend the Dean Mason Memorial Fund’s kindness and pay for an event in Monmouth next summer. I need to raise at least £5,000 to host one day’s screening, when 100 youngsters can get checked.” Read More
BBC Radio Solent – George & Amelia Ashby, Graham Hunter and Dr Steven Cox
Starting at 41:01 in the programme, George Ashby and his mum, Amelia Ashby talk about discovering George's heart condition, his surgery and the importance of screening, on BBC Radio Solent.
Later on in the programme, at 1:41:33 Graham Hunter and CRY CEO Dr Steven Cox talk about their reactions to George's story, the more than 1,400 young people who have been screened thanks to the Hunter family, CRY's research and the pledge to create a National Strategy for the Prevention of Young Sudden Cardiac Death.
Garden Centre Fundraises for Cardiac Risk in the Young
The Herts Advertiser, 19th June 2019
Burston Garden Centre in St Albans has raised nearly £9000 for Cardiac Risk in the Young (CRY). The Garden Centre made CRY its chosen charity after a member of staff lost his son to an undiagnosed heart condition. In the last couple of years since then, they have raised more than £8800 for CRY through various activities and events. "This is a charity that is close to our hearts, so we are delighted to have raised such a significant amount for Cardiac Risk in the Young," said owners of Burston Garden Centre, Enid Pearson and Eileen Preistland. CRY aims to prevent sudden cardiac death by providing young people with heart screenings which can detect hidden conditions which often present no signs or symptoms. "On behalf of all of us at CRY, I would like to say a huge 'thank you' to the team at Burston Garden Centre for all their hard work and commitment to CRY's cause," said CRY's Chief Executive Steven Cox. "The staff, and their customers, have raised a tremendous amount of money for CRY to help support our ongoing mission to prevent the incidence of young sudden cardiac death and we are incredibly grateful for their efforts." Read More
Young People to Receive Heart Screenings in Memory of Miriam Lee
Northamptonshire Telegraph, 20th June 2019
Miriam Lee passed away at just 17 years old of an undiagnosed heart condition. Since her death in 2016, her mother, Nicola, has been raising funds for Cardiac Risk in the Young (CRY). Having set up the Miriam Lee Memorial Fund with CRY, Nicola aims to provide ECG screenings for young people between the ages of 14 - 35. "Twelve young people die every week from undetected heart problems and virtually all of them have no symptoms. It often involves people who are very fit," she said. "It's so important that there's something for young people and if we can save one life, or pick up one condition that could cause someone a problem, we'll be happy."
A screening for 100 young people costs around £5000 and Nicola has currently raised about £1800 through various fundraising activities. She is hoping to further supplement the fund through an upcoming Family Fun Day event which is set to be held between 2pm and 5pm on June 29 at the Ise Valley Scout Hut in Grantown Close, Kettering. "There are some specific conditions that the screening will pick up that a trip to a GP might not and it can pick things up that are genetic," Nicola stated. "We don't know whether it would have discovered what eventually caused Miriam's death but these screenings undoubtedly save lives." Read More
Mum and son cycle around the Isle of Wight for CRY
West Sussex County Times, 19th June 2019
Having been diagnosed with a previously unknown heart condition George Ashby and his mum Amelia will be cycling 66 miles around the Isle of Wight to raise money for Cardiac Risk in the Young (CRY) to help save lives of other young people.
Three Peaks Challenge in memory of Joe Leyland
Tamworth Informed, 16th June 2019
Control room operators Ian Leyland, Josh Snape, Annie Sant, Nikki Harris, and control room managers Charlotte Raftery, James Ball, Lucy Styles and PC Jen Rawsthorne will be taking on the three peaks challenge on 26th June in memory of Ian's son Joe. Money raised will be going to Cardiac Risk in the Young (CRY). To date Ian has raised £31,500 for the charity.