Estate agents take the field for charity
Local estate agents FBM are playing an active role in the local community.
The company recently entered a six-a-side football team into a competition held at Kilgetty playing fields, raising money for CRY (Cardiac Risk in the Young).
Manager of the Pembroke office, Luke Lawrence, said: “It was an ideal opportunity to raise money for charity and enjoy a day out.
“It also gives many people a great chance to kick the local estate agents.”
Unfortunately FBM are not as good at football as they are selling houses – losing in the semi-final to a team aptly called The Sumo Warriors.
Managers Luke Lawrence and Luke Remington will also enter the Great North Run in September to raise money for the NSPCC.
Andy Scott benefit fund
Andy Scott is a 32-year-old former professional footballer (Sheffield United, Brentford, Oxford and Leyton Orient) who has been forced to retire from the game after doctors warned any physical exercise could kill him.
Andy has been diagnosed with Hypertrophic Cardiomyopathy (HCM), a genetic disorder which restricts the efficient pumping of blood around the body due to a thickening of the heart muscle from inside. This condition is also known as
Tragic mum's bid to save youngsters
A bereaved mum is campaigning for young people to be screened for potential cardiovascular disorders following the death of her son from Sudden Adult Death Syndrome. Ruth Lowe, of Fulwood, says if her 21-year-old son Andrew Parr had been given an ECG, his heart problem, which went undetected until his death, may have been picked up sooner.
Andrew, who was a vehicle electronic equipment installer for Base Systems on Fylde Road, Preston, collapsed outside Tokyo Joe
Local group highlights cardiac risks among young people
The Omagh members of CRY (Cardiac Risk in the Young) held an awareness day in Prospect Court last weekend to give local people an insight into the work they are doing, and the campaigns in which they are taking part.
One of the biggest campaigns they are taking part in is the Postcard Campaign, which began in May. The campaign aims to get MPs to lobby the British Government to set up a mobile screening programme, which could help save the lives of many young people.
The campaign is going well but requires additional support, especially from local schools and sports groups.
Helena McEnhill, who lost her son Proinnsais to an undetected heart condition, is a local supporter of CRY and has travelled round many schools in the local area in at attempt to raise awareness of such conditions. Proinnsais’s heart condition could have been treated if it had been detected.
She said, “Local GP’s need top know about these conditions and how to detect and treat them. I wouldn’t want another family go have to go through what our family went through. Too many young people are dying from these preventable conditions which can be easily detected by Mobile Cardiac Screening."
At least eight apparently fit and healthy young people die of undiagnosed heart conditions each week. Tyrone All-Ireland football champion Cormac McAnallen was a high-profile victim of such an undiagnosed heart condition. Yet experts believe that most of these deaths are due to Sudden Death Syndrome. Until the law is changed and coroners have to refer hearts on to specialists we will not know the true figures.
To reduce the risk of young deaths, a screening programme, ideally in schools so everybody can benefit.
CRY is a national charity raising awareness of potentially genetic cardiac abnormalities in young people, offering bereavement support for families and promoting screening for those at risk.
The Omagh members received a great response to their awareness day, and hope that this local support will continue to help strengthen their campaign. The group would also like to thank Tom Sweeney who turned up to show his support for the Awareness Day on Saturday.
Appeal is CRYing out for your help
A gym instructor has volunteered to plunge thousands of feet through the air to help a charity that aims to prevent young people dying suddenly from heart problems.
Chris Nichols (left - seated on exercise machine), who has three daughters and works at Fitness 2000, Pickering, has decided to tackle a parachute jump to raise cash for Cardiac Risk in the Young (CRY).
Mr Nichols found out about the charity from Marjorie and Allan Scott, the parents of Ryedale teenager Mike Scott, who died unexpectedly, aged 17 from a heart defect.
York youngsters David Harry, 15, of New Earswick, and Jamie Bucknell, 14, of Strensall, died suddenly, in October 2002 and in November 2001 respectively from undetected heart defects.
Since their son’s death in 1996, Mike’s parents have backed CRY in its mission to raise awareness about young people dying from cardiac abnormalities and to campaign for a national screening programme.
The couple, from Beadlam, near Helmsley, have helped to promote a postcard campaign launched to lobby local MPs to support the Cardiac Risk in the Young (Screening) Bill, and join the CRY All Party Parliamentary Group (APPG) to keep up pressure in the House of Commons.
The postcards picture eight young victims, highlighting the fact that at lest eight young people a week die suddenly from undetected heart conditions.
Mike Scott, who died on December 28, 1996, is pictured on the version of the postcard from the north.
“He died very suddenly. He was very fit and healthy – there was nothing wrong with him. He just went off to work one day and collapsed while playing basketball and died. He had only fainted once, three weeks to the day before he died. The shock was immense,” said Mrs Scott.
Keen sportsman Mike was studying for his A-levels at Lady Lumley’s School, Pickering, and had a part-time job at a leisure centre when he died.
After seeing one of the postcards, Mr Nichols decided to do a parachute jump in Bridlington on August 7 to raise cash.
Mother's mission to raise SADS profile
An Ulverston mum who lost her 22-year-old son to the little-known adult equivalent of cot death has set herself an awareness-raising mission.
Two years after Lee Stables died suddenly while enjoying a backpacking trip around India, his mum Sharen is hoping to raise both funds and knowledge of Sudden Adult Death Syndrome (SADS).
“I’m doing it in memory of Lee, I don’t want anyone else to go through what we’ve been through,” she said. “If I can raise money and stop it happening to other people then his death hasn’t been in vain.”
Her son was inexplicably found dead in bed by his girlfriend in March 2002, the day after his 22nd birthday. A post mortem examination could find no reason for his death leading to speculation about SADS – an umbrella term for the many different causes of cardiac arrest in young people.
Mrs Stables, who runs Ulverston home furnishers Stables with her husband Phil, will be manning a market stand next week leafleting about SADS for the support charity Cardiac Risk in the Young (CRY).
Accurate statistics are not available but CRY believes at least four people under 35 die suddenly from heart problems every week.
Many of these deaths are preventable and CRY wants to see youngsters given routine electrocardiogram tests (ECGs) as they are in Italy in order to detect any heart problems. Mrs Stables is hoping to help the charity reach its goal by raising cash to buy more ECG machines for GP surgeries and hospitals.
Olympic rower and gold medallist Sir Steve Redgrave and former England cricketer Ian Botham are both backers of the campaign.
To rally funds, Mrs Stables is holding a raffle to raise at least £1,000. Generous donations have flooded in from Ulverston traders including Finnertys, Brand X, Cumbria Office Supplies, Woolworths, and the Lonsdale House Hotel. A meal for two with wine, clothes and chocolates aplenty are among the prizes.
She has also had a blouse donated from Coronation Street’s Blanche Hunt aka Maggie Jones.
Heart risks for young highlighted
An information day was held in Prospect Court in Omagh at the weekend to raise awareness of Cardiac Risk in the Young.
Each week at least eight apparently fit and healthy young people die of undiagnosed heart conditions. Tyrone All-Ireland football champion Cormac McAnallen was a high-profile victim of such an undiagnosed heart condition. Yet experts believe that most of these deaths are due to Sudden Death Syndrome. Until the law is changed and coroners have to refer hearts on to specialists we will not know the true figures.
To reduce the risk of young deaths, a screening programme, ideally in schools so everybody can benefit, should be introduced. In May, the Postcard Campaign was launched in Belfast to heighten awareness and try and get our MPs to lobby the government to set up a screening programme. This campaign is going well but is urging for support from schools.
Parachute jump to raise cardiac awareness
A gym instructor has volunteered to plunge thousands of feet through the air to help a charity that aims to prevent young people dying suddenly from heart problems.
Father-of-three Chris Nichols, who works at Fitness 2000, Pickering, is preparing to tackle a parachute jump to raise cash for Cardiac Risk in the Young (CRY).
Mr Nichols found out about the charity from Marjorie and Allan Scott, the parents of Ryedale teenager Mike Scott, who died unexpectedly from a heart defect, aged 17.
York youngsters David Harry, 15, of New Earswick, and Jamie Bucknell, 14, of Strensall, died suddenly, in October 2002 and in November 2001 respectively, from undetected heart defects.
Since their son’s death in 1996, Mike’s parents have backed CRY in its mission to raise awareness about young people dying from cardiac abnormalities and campaign for a national screening programme.
The couple, from Beadlam, near Helmsley, have helped promote a postcard campaign launched to lobby local MPs to support the Cardiac Risk in the Young (Screening) Bill, and join the CRY All Party Parliamentary Group (APPG) to keep up pressure in the House of Commons.
The postcards picture eight young victims, highlighting the fact that at least eight young people a week die suddenly from undetected heart conditions.
Mike Scott, who died on December 28 1996, is pictured on the version of the postcard from the north.
“He died very suddenly. He was very fit and healthy – there was nothing wrong with him. He just went off to work one day and collapsed while playing basketball and died. He had only fainted once, three weeks to the day before he died. The shock was immense,” said Mrs Scott. Keen sportsman Mike was studying for his A-levels at Lady Lumley’s School, Pickering, and had a part-time job at a leisure centre, when he died.
After seeing one of the postcards, Mr Nicholls decided to do a parachute jump in Bridlington on August 7 to raise cash.
Sponsors can phone Chris on 01751 433466, Kerys on 01751 477300, or Mrs Scott on 01439 771293.
Alarm clock tragedy mum calls for new probe
A Coroner may re-open an inquest into the death of a nurse who died of sudden heart failure after being suddenly awoken by her alarm clock.
New DNA evidence has ruled that Lisa Jane Browne DID die of a rare heart abnormality which could now spark a fresh probe into her death.
The 27-year-old registered nurse died in January 1998 after being startled by her 6am alarm call.
Her family, from Connah's Quay, Deeside, North Wales, has always suspected she died as a result of the rare Long QT Syndrome, an electrical abnormality of the heart which cannot be detected after death.
And in light of the new evidence based on Lisa's post-mortem tissue, Cheshire coroner Nicholas Rheinberg may now be forced to order a new inquest into her death.
Last night, Lisa's mum Doreen Harley welcomed the new evidence after a two-year wait, saying it was the "final piece of the jigsaw".
She is calling for a fresh inquest into her daughter's death and wants Mr Rheinberg to strike out the original inquest verdict that her cause of death was "unascertainable".
Mrs Harley, 57, wants her daughter's death certificate to be re-written and her cause of death to be certified as a result of Long QT Syndrome.
She said: "We have been given this new evidence following DNA tests in Sweden. We have waited two years for this result which is based on DNA tests taken on Lisa's post-mortem tissue.
"We have been in contact with the Cheshire coroner to ask if he will consider opening a new inquest. We expected this ruling but it is the final piece of the jigsaw."
Lisa Browne was due to attend work as a nurse at the Countess of Chester Hospital on the morning of her death.
"It is now clear Lisa died as a result of this syndrome," said Mrs Harley. "I believe she died after she woke to turn her alarm off."
Although the DNA tests uphold what Mrs Harley always believed, the results could mean bad news for Lisa's five-year-old nephew Adam, who lives in Nuneaton.
Since Lisa's death, her family have all been screened. Her father Terry, sister Rachel, and nephew Jack have all been diagnosed with Long QT Syndrome.
The family will soon learn if Lisa's five-year-old nephew has the condition.
If he is diagnosed, Adam may have to endure a course of beta blockers to help regulate the heart or face the prospect of surgery to have a pace-maker-style machine fitted.
"We are waiting for the results of DNA tests to find out. We should hear very shortly," said Mrs Harley.
"There is a 50:50 chance he may have it."
Although he has been passed the new DNA evidence, Mr Rheinberg is awaiting the advice of Lisa Browne's pathologist at the Countess of Chester Hospital before deciding whether to open a new inquest.
If he chooses not to, he still has the power to amend Mrs Browne's cause of death on her death certificate.
Families unite to tackle cruel killer
Every week eight young people across Britain die suddenly from undetected heart conditions.
Now in an effort to highlight this devastating loss the charity CRY – Cardiac Risk in the Young – is launching postcards across all areas of the country with photographs of eight young people from that area who have died in these tragic circumstances.
The Northern Ireland postcard includes pictures of two teenagers from Lisburn who died from undetected heart conditions.
Nicholas Collins from Balinderry was only 16 when he died in 1998 and Ciara Agnew from Derriaghy just 14 when she passed away in 2002.
The launch of the campaign on Sunday included speeches from Alison Cox, Founder and Chief Executive of CRY and John Lundy, whose son Aaron died aged 19. The group wants everyone to lobby their MP to find ways to prevent cardiac deaths among the young.
This month thousands of the postcards will be distributed by CRY supporters to people across Northern Ireland, who will ask them to send them onto their local MP.
A new card is being launched every month, portraying victims from 12 different regions across the UK.
CRY hope the postcards will maintain the momentum set earlier this year when the Department of Health agreed to add a new chapter to the National Service Framework on Coronary Heart Disease, dedicated to sudden death among young people.
The eight young people on the Northern Ireland postcard had no apparent symptoms or history of bad health. But their deaths could have been prevented if cardiac screening was more accessible.
Alison Cox said: “By showing just some of the faces behind the stories we read and hear about all too often we can help people begin to understand the heartbreak caused by this cruel killer and highlight the fact that it can happen to anyone, at anytime – usually without warning.
Yet these eight faces – representing the eight lives lost a week in the UK – show just a snapshot of the problem. We need to keep up the pressure and engage support from as many MPs as possible to make sure we can prevent other families from experiencing such tragic losses.”
Fit and healthy, yet heart infection claimed teenager Nicholas' life
Ballinderry schoolboy Nicholas Collins was just 16 years of age when he suffered from a fatal viral infection in 1998.
At the time knowledge of causes of heart diseases among young people was relatively scant. The keen, fit, basketball player spent seven weeks at the coronary care unit at the City Hospital, Belfast before passing away on November 24, 1998. Later it was revealed a viral infection caused his heart muscles to inflame and he suffered from a fatal haemorrhage.
The first signs Nicholas was unwell were in October 1998 when he returned home from college one Friday complaining of a sore throat and flu. He didn’t feel well enough to go to basketball practice in Lisburn.
Although he was prescribed antibiotics the doctor later had him admitted to the Lagan Valley Hospital. From there he was sent to the coronary care unit at the City Hospital where he was to spend the next seven weeks.
During his time there it was revealed that a viral infection had caused his heart muscles to inflame. His temperature and heart rate would fluctuate. Numerous tests were carried out but as time went by he got weaker and weaker.
At times he seemed to be improving and his mother even told the owner of a computer shop where he had applied for a part-time job that he could start work before Christmas. But Nicholas took a turn for the worse and suffered a fatal haemorrhage and despite having a blood transfusion passed away.
Brenda feels that her son may have died sooner, like other high profile more recent cases like Cormac McAnallen, if he had not been admitted to hospital when he was.
She knows doctors tried their best during his stay and that his hospital care was excellent. She feels that potentially life threatening heart conditions among the young can sometimes not be taken seriously enough.
"A sports teacher once told me that many young sporty men are very competitive and never want to complain that they are unwell,” she said.
“It is as though they find it hard to admit they do not feel well and just keep on going – not to let the side down.”
Brenda agreed to Nicholas’s picture being used on the CRY campaign postcards to encourage people to demand action by raising awareness among the general public as well as within the medical profession.
“Families are often told that this is a very rare event and so they think that their case is unique but over the years a lot of young people have died of these conditions and at least some of these deaths might have been prevented,” she said.
Charities are winners too!
Fundraisers from across Tendring put their running shoes on to come up with the case for charity in the 25th anniversary Flora London Marathon.
One Frinton family’s effort paid off beyond their wildest dreams. Sarah Perry, 32, died tragically after a long battle with anorexia. And since then her father, Chris Perry, and his wife Sally, of Harold Grove, Frinton, together with their four other children, have mounted a campaign to save others and raise money for the Eating Disorders Association charity.
On Sunday, brothers Tom, 34, Giles, 31, Luke, 28, and sister Charlotte. 30, were among the 35,000 runners. They had hoped to boost their funds from £16,000 to £20,000 but it now looks likely it will be nearer £22,000 thanks to all the support they have received. Tom completed the course in 4hrs 47mins while the others arrived together in 5hrs 29mins.
Chad Harrison, of Anchor Road, Clacton, ran his first marathon in six hours to raise money for Macmillan Cancer Relief. Mr Harrison, 33, joined a team of more than 650 runners of all ages as part of Team Macmillan.
He said: “The first few miles were no problem but when I got to Tower Bridge my shoulders gave way.”
Mr Harrison, who is a signalman for Network Rail, is now gathering sponsorship money in, which he expects to be about £3,000. It will also be matched up to £1,200 by his company. He is now hoping to run again next year to raise funds for a children’s charity.
Weeley farmer David Partridge completed his second and last marathon in 4hrs 57mins.
“I was on for a much better time but hit a wall at 23 miles,” he said. Mr Partridge hopes to raise about £2,000 for the Meningitis Trust.
Clacton policeman PC Trevor Abrahams was also collecting sponsorship after successfully completing the marathon. He is hoping to raise more than £1,000 for CRY (Cardiac Risk in the Young). Also running for CRY were Clacton Ladies Hockey Club members Julie Smith and Sarah Morton.
It was their first marathon and Julia came home in 5hrs 34mins while Sarah finished in just over six hours. They hope to collect about £3,000 for their charity.
“It was the most fantastic day – and if I can do it anyone can,” said Julia.
Runners take the marathon course to charitable victory
This time last year she couldn't run a mile. But on Sunday one
Watford woman showed just what you can do if you put your mind to it - by running an entire marathon.
Tessa Denham-Cookes, from Watford, ran the 26 miles in aid of Cardiac Risk in the Young (CRY).
She said: "It was really good, I loved every moment of it."
Tessa, who finished the race in five hours and six seconds, said she had wanted to support a smaller UK-based charity, and so chose CRY, which aims to raise awareness of Sudden Cardiac Death and Sudden Death Syndrome in young people.
Birdman home – behind rhino
A granddad in a bird costume completed the London Marathon – but he was disappointed to be overtaken by a rhino and an inflatable taxi in the final straight!
Dale Lyons completed his “31st” London Marathon in five hours 12 minutes, raising money along the way to help reintroduce the Great Bustard back to Britain.
The 68-year-old from Smithy Lane, in Church Lawford, said: “I don’t think I ate enough because I had nothing more to give at the end and the final indignity was at 24 miles out when someone dressed as a rhino overtook me. It got worse when an inflatable taxi went past me shortly after.”
Nevertheless, his efforts still raised £600 to help fund a breeding programme in Wiltshire for the Great Bustard – one of the world’s largest flying birds. Weighting at 40lb, and with a 7ft wingspan, the birds had been hunted to extinction in the UK by the mid-19th century.
Dale had already been pledged £450 before the race and was given a further £150 by generous people on the route.
He said: “It was the best supported marathon I have every been in. They came out in droves.
“Normally when you get to the Isle of Dogs you get some gaps in the crowds, but this year there weren’t any.”
It was Dale’s 31st London Marathon in 25 years, having run it twice and three times in previous years.
Other local runners included a nurse at Rugby’s St Cross Hospital who raised more than £2,000 for CRY (Cardiac Risk in the Young).
Sue Barnard, who completed it in four hours 54 minutes, said she had been “overwhelmed” at the response.
Stephen Jefferies, aged 30, from Ophelia Drive, Warwick, finished the race in four hours seven minutes, raising £400 for the British Heart Foundation, as a tribute to his father who had suffered two heart attacks.
Tessa's marathon effort helps charity
This time last year she couldn’t run a mile. But on Sunday one Watford woman showed just what you can do if you put your mind to it – by running an entire marathon.
Tessa Denham-Cookes from Watford, ran the 26 miles in aid of a little-known charity called Cardiac Risk in the Young (CRY).
She said: “It was really good, I loved every minute of it.”
Tessa, who finished the race in five hours and six seconds, said she had wanted to support a smaller UK-based c
harity, and therefore chose CRY, which aims to raise awareness of Sudden Cardiac Death and Sudden Death Syndrome in young people.
Despite the warm weather, Tessa said she found the course bearable.
She said: “I found the conditions good, I was praying it wouldn’t rain. I didn’t find it too difficult.
"There was a brilliant atmosphere. The crowds cheer you on when you start to flag. It really kept me going.”
Tessa, who was supported on the day by her dad, brother and fiancé, Bob, raised £1,400 for charity.
The 25-year-old said: “As soon as I crossed the finish line, I felt shattered but elated at the same time.
"It was my first marathon so I just followed the training programme.
“To be able to complete it all is such an achievement.
“Last year I watched it and I just thought ‘one day I would like to say I ran the marathon.’
"The first thing I said when I crossed the finish line was 'I want to do the next one'.”
Tessa, who works as an intelligence analyst for the Metropolitan Police, said she would recommend running the marathon to everyone.
She said: “I would encourage anyone to do it. It’s an amazing feeling.”