We first found out about CRY in January 2006 when we lost my brother to undiagnosed ARVC after he collapsed on the football pitch. After family screening I too was diagnosed with ARVC and had my first defibrillator fitted in May 2006. I began to attend the myheart meetings and everyone was so friendly and welcoming.
Since that first meeting I have become one of the ‘old hands’ and welcomed many new faces, and as a group we have always wanted to help raise the profile of CRY. When CRY asked me to become a representative it seemed the natural next step to help make more people aware of young sudden cardiac death, and by talking from personal experience I hope that I can help make the message get through.
