On May 11 we hosted the first CRY Family Research Day, giving some of our supporters a chance to learn more about the massive impact of our research.
CRY myheart cardiologist Dr Michael Papadakis spoke, looking at how CRY’s research has changed the way we investigate families after a young sudden cardiac death. Dr Papadakis explained everything that goes into this kind of assessment, the characteristics of SADS victims, why there is a high prevalence of Brugada Syndrome, and the characteristics of various conditions like hypertrophic cardiomyopathy (HCM) and idiopathic left ventricular hypertrophy.
To finish, Dr Papadakis emphasised how important teamwork is in all areas to research these conditions and complete the necessary testing for people all around the UK. “It’s multi discipline teamwork,” Dr Papadakis said. “A cardiologist cannot do it alone. We also need, apart from the geneticist and the pathologist, our nurses, our genetic counsellors, the GPs – very important, those are the individuals who’ve been dealing with the family for many years and will continue dealing with that family, so they need to keep very well informed. And obviously the psychologist and our patient groups, like Cardiac Risk in the Young, who support the families and also support our research.”