Preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families.

01737 363222

cry@c-r-y.org.uk

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  • Home
  • Support
    • After a Young Sudden Cardiac Death
      • Bereavement Support
      • Individual Support
      • Coroner
      • Coroner Inquest Support
      • Memorial Funds
      • My Story
    • Living with a condition
      • myheart – Support Network
  • Cardiac Screening
    • Frequently Asked Questions
  • Research
    • CRY’s Research
    • Research Fellows
    • Research Fellowship Grants
    • CRY International Conference
  • Medical Information
    • Resources for GPs
    • Sample ECGs
    • myheart – Support Network
  • Fundraising
    • Become a CRY Fundraiser
    • Fundraising Hub
    • Fundraising FAQ’s
    • Upcoming CRY Events & Places
    • Upcoming Supporter Led Events
    • Challenge and Overseas Events
    • Event Write Ups
    • Shop
    • Proceeds to CRY
    • Memorial Funds
  • Awareness
    • Ambassadors
    • In the Media
      • National News
      • Regional News
    • CRY Press Office
    • CRY Press Release
    • Volunteer for CRY
    • Patrons
  • About Us
    • Ambassadors
    • Contact Us
    • Representatives
    • Parliament
    • Patrons
    • CRY Staff
  • Shop
  • Donate

Sudden death syndrome (SDS) is an umbrella term used for the many different causes of cardiac arrest in young people. CRY provides medical information on the most common causes of unexpected sudden cardiac death – sometimes referred to as SADS – in the young (under 35)

In the UK, unexplained sudden death is frequently recorded as due to death from natural causes. Until the law is changed and coroners have to refer hearts on to specialists we will not know the true figures. CRY’s fast track coroner / pathology service enables the cause of death in a sudden death case to be established more quickly and accurately than might otherwise happen if left to a local coroner lacking expertise in cardiac pathology.

  • Aortic disease
    Aortic disease
  • ARVC – Arrhythmogenic Right Ventricular Cardiomyopathy
    ARVC – Arrhythmogenic Right Ventricular Cardiomyopathy
  • Brugada syndrome
    Brugada syndrome
  • CAAs – Coronary Artery Anomalies
    CAAs – Coronary Artery Anomalies
  • CAD – Coronary Artery Disease
    CAD – Coronary Artery Disease
  • Churg-Strauss Syndrome
    Churg-Strauss Syndrome
  • CPVT – Catecholaminergic polymorphic ventricular tachycardia
    CPVT – Catecholaminergic polymorphic ventricular tachycardia
  • DCM – Dilated Cardiomyopathy
    DCM – Dilated Cardiomyopathy
  • EFE – Endocardial Fibroelastosis
    EFE – Endocardial Fibroelastosis
  • HCM – Hypertrophic cardiomyopathy
    HCM – Hypertrophic cardiomyopathy
  • Idiopathic left ventricular hypertrophy
    Idiopathic left ventricular hypertrophy
  • Ion channelopathies
    Ion channelopathies
  • IVF – Idiopathic ventricular fibrillation
    IVF – Idiopathic ventricular fibrillation
  • Kawasaki Disease
    Kawasaki Disease
  • Long QT Syndrome
    Long QT Syndrome
  • Marfan Syndrome
    Marfan Syndrome
  • Myocarditis
    Myocarditis
  • PCCD – Progressive cardiac conduction defect
    PCCD – Progressive cardiac conduction defect
  • PFO – Patent Foramen Ovale
    PFO – Patent Foramen Ovale
  • Premature Coronary Artery Disease and Familial Hypercholesterolemia
    Premature Coronary Artery Disease and Familial Hypercholesterolemia
  • RBBB – Right Bundle Branch Block
    RBBB – Right Bundle Branch Block
  • Restrictive Cardiomyopathy
    Restrictive Cardiomyopathy
  • SQTS – Short QT syndrome
    SQTS – Short QT syndrome
  • Tachycardia
    Tachycardia
  • WPW – Wolff (Wolfe)-Parkinson-White Syndrome
    WPW – Wolff (Wolfe)-Parkinson-White Syndrome

What is SADS?

In the context of cardiology, the term SADS refers to Sudden Arrhythmia Death Syndrome. However, the media sometimes refers to SADS as ‘Sudden Adult Death Syndrome’; or use SADS for referring to the more general notion of a sudden death of an apparently fit and healthy young person.

More Information
SADS.org.uk

Implantable Cardioverter Defibrillators (ICD)

An ICD is a medical device to treat life-threatening heart rhythm abnormalities. It consists of a small box containing a battery and electronics that is inserted under the skin and wires that are most commonly passed through the bloodstream into the heart but can also remain under the skin.

More Information

myheart Support Network

CRY’s myheart network provides personalised help, support, and information to individuals between the ages of 12 and 35 who have been diagnosed with a life-threatening cardiac condition.

Visit Website

SADS Booklet

Information for the family and relatives of a young person who has died of Sudden Arrhythmic Death Syndrome – SADS sometimes called sudden adult death syndrome. When a young person dies suddenly by Dr Elijah R Behr MD
Read Online

From ARVC to WPW

This booklet is a comprehensive explanation of conditions that can cause a sudden cardiac arrest; tests used to diagnosed and investigate cardiac conditions; drugs to avoid if diagnosed with one of these conditions and lifestyle advice.

Read Online

Cardiac Tests

Because the channelopathies, cardiomyopathies and Marfan’s may be inherited, if you are a blood relative in the immediate family of someone who has a channelopathy or cardiomyopathy or has died of SADS, it is important that you are evaluated for signs of these diseases. Below, we explain what is involved in the evaluation and describe the tests you may need to have.

More Information

Sample ECGs

CRY has a library of videos of ECG results and abnormalities narrated by CRY Consultant Cardiologist Professor Sanjay Sharma.

View Videos

Pathology CRY CCP

In 2008 CRY’s fundraisers facilitated the establishment of the CRY Centre for Cardiac Pathology (CRY CCP) – a centre of excellence for a fast-track expert cardiac pathology service for bereaved families. CRY provides this service, funding the cost of coroners’ referrals, so that families no longer have the ordeal of a protracted wait for the cause of death of their child or partner.

More Information

Medical DVD

The DVD contains a wealth of information about heart conditions that can cause young sudden cardiac death, in the form of short video clips. In these clips, CRY Consultant Cardiologist Professor Sanjay Sharma gives details about the various cardiac conditions, including possible symptoms (if any), diagnostic techniques and types of treatment available.

More Information

Preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families.

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Contact Information

Head Office:
Unit 1140B, The Axis Centre,
Cleeve Road, Leatherhead,
Surrey KT22 7RD

Tel: 01737 363222
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Email: cry@c-r-y.org.uk

Registered Charity Number: 1050845
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