Preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families.

01737 363222

[email protected]

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  • Home
  • Support
    • After a Young Sudden Cardiac Death
      • Bereavement Support
      • Individual Support
      • Coroner
      • Coroner Inquest Support
      • Memorial Funds
      • My Story
    • Living with a condition
      • myheart – Support Network
  • Cardiac Screening
    • Frequently Asked Questions
  • Research
    • CRY’s Research
    • Research Fellows
    • Research Fellowship Grants
    • CRY Cardiology Conference
  • Medical Information
    • Resources for GPs
    • Sample ECGs
    • myheart – Support Network
  • Fundraising
    • Become a CRY Fundraiser
    • Fundraising Hub
    • Fundraising FAQ’s
    • Find an Event
    • Upcoming Supporter Led Events
    • Event Write Ups
    • Memorial Funds
    • Proceeds to CRY
  • Awareness
    • Ambassadors
    • In the Media
      • National News
      • Regional News
    • CRY Press Office
    • CRY Press Release
    • Volunteer for CRY
    • Patrons
  • About Us
    • Ambassadors
    • Contact Us
    • Representatives
    • Parliament
    • Patrons
    • CRY Staff
  • Shop
  • Donate

Frequently Asked Questions

Service Evaluation – Frequently Asked Questions (FAQ’s)

We are extremely passionate about the work we do as a charitable organisation and regard this project as having immense potential to enhance the effectiveness of our nationwide cardiac screening programme. In doing so, we hope to increase the number of heart checks performed as well as identify and facilitate the management of individuals with undiagnosed

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04/03/2021

Why do I need a heart scan?

A heart scan is effectively another term for a cardiac ultrasound that is useful for identifying cardiac abnormalities such as problems with the valves of the heart or a hole in the heart. The heart scan will also show heart size and therefore is very useful at identifying cardiomyopathy. So we normally use heart scans in

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01/01/1970

What happens if something is found on my ECG?

There’s about a 4% chance that something will be found on the ECG. If we do identify an abnormality then we would recommend further investigations in the form of a cardiac ultrasound – which is what we perform most commonly – and sometimes patients are also required to have a 24 hour ECG and an exercise

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01/01/1970

My ECG is normal but I still have symptoms. What should I do?

A normal ECG usually excludes major problems. However, if someone is suffering from intermittent palpitations, it suggests that there’s an intermittent heart rhythm disorder that may not be picked up on an ECG when the patient feels perfectly well. In these situations, we would recommend a 24 hour ECG recording whereby an ECG electrode is attached

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01/01/1970

After looking at my ECG the doctor now wants to do an ECHO, is something wrong?

The ECG is done primarily to look for disorders of the electricity of the heart. However, the ECG can also provide important information regarding the size of the heart. So if the ECG shows that the left chamber or the right chamber is enlarged then the best way to confirm or refute this is to perform

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01/01/1970

My son / daughter needs a repeat. Should I be worried?

It is common practice for those individuals who have been screened under the CRY screening programme to be called back for a repeat screen. This is usually the case when we screen someone who's 14 or 15, who is still prepubertal. If we bear in mind that people reach puberty at different ages and the puberty

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01/01/1970

Why are some people asked to have an ECHO?

Assuming that the ECG has been read by a cardiac expert, most people who have an ECG will not require any further investigations. In some instances, the ECG may show up suspicion of a heart muscle disorder in the form of very large, what we call QRS complexes, which are these spiky bits on the ECG.

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01/01/1970

What will happen if I am found to have a condition?

If a condition is identified at the CRY screening programme, the individual will be referred to a cardiologist that has experience in managing conditions that cause sudden death in the young or managing individuals who play a lot of sport. The aim would be to treat the symptoms if there are symptoms; to identify individuals who

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01/01/1970

Will I have to stop playing sport?

The question about whether an individual can continue to play sport after a screening depends on what we identify. If a diagnosis of cardiomyopathy or an ion channel disorder is made then, based on the European Society of Sport Cardiology and the American Bethesda Guidelines, we would recommend that that individual does not perform any type

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01/01/1970

If something is found, how will this affect insurance or mortgages?

The impact of cardiac disease on insurance or mortgage is entirely dependent on the type of cardiac abnormalities. The identification of a cardiomyopathy or an ion channel disorder is serious because these conditions can shorten life span and will almost certainly have an important impact on insurance premiums. Most insurance companies would not be keen to

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01/01/1970
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Preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families.

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Contact Information

Head Office:
Unit 1140B, The Axis Centre,
Cleeve Road, Leatherhead,
Surrey KT22 7RD

Tel: 01737 363222
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