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Support
After a young sudden cardiac death and for young people diagnosed with a condition
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Our Services
Support
The emotional impact of the sudden, seemingly inexplicable death of a young person on their family cannot be underestimated. CRY offers emotional and clinical support following a young sudden cardiac death.
Screening
Screening to identify young people at risk is cost-effective when conducted correctly - the conditions can be treated, securing a future for those identified. All young people should have the choice to be tested.
Research
CRY's research programme gives us unique access to general population-based data, enabling comparisons between athletes, ethnicities and gender. Better understanding of what is normal for young people, can better identify and treat those at risk.
Awareness
Awareness not only helps identify those at risk, but also ensures correct clinical practice when treating a young person with an inherited cardiac condition.
CRY's Vision
Preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families.
My story
My beautiful daughter Bethany aged 23 suddenly collapsed and suffered a cardiac arrest when she was in a nightclub in North Devon on 27th August (2017). We didn’t know Bethany had a heart condition since birth called ALCAPA (Anomalous left coronary artery from the pulmonary artery). The nightclub didn’t have a defibrillator and we will never know if one could have saved her life. Bethany leaves behind her 2-year-old daughter; I’m just heartbroken. I’m trying to raise awareness for all babies to be screened before leaving hospital as every babies heart matters. Screening should be put in to place...
Cardiac Screening
CRY offers subsidised ECG and Echocardiogram screening to all young people between the ages of 14 & 35.
There is a simple way to diagnose most cardiac abnormalities. This is by having an ECG (electrocardiogram) test. Results should be read by a cardiologist. For extra clarity an Echocardiogram (ultrasound scan) can also be done.If there has been a young (under 35) sudden death in the family, the family is entitled to be screened on the NHS.
All of CRY's public events are free to attend.
CRY parents recognised with Points of Light award...
Prime Minister Theresa May has recognised Mario and Debbie Dubois, from Manchester, for screening thousands of young people for heart conditions. They are the latest recipients of the Points of Light award, which recognises outstanding volunteers who are making a change in their community. Inspired by the life of their son Harry, who passed away from…... Read more
Simplyhealth Great North Run 2018...
Congratulations and a huge thank you to the 50 runners who took part in the Simplyhealth Great North Run for CRY on Sunday 9th September 2018. It was once again a lively event, living up to its billing as the world’s biggest half marathon. There were plenty of people out to show their support and…... Read more
Charlotte Receives New Heart After CRY Cardiac Screening
6th September 2018 Charlotte Carney spoke to Metro about her successful heart transplant after being diagnosed with Restricted Cardiomyopathy following a CRY cardiac screening. Read mor... Read more
Latest CRY Supported Research Highlights Importance Of Repeat Screening For Elite Competitive Athletes
Whilst the majority of people with cardiac conditions will be diagnosed following routine cardiac screening, we have always known that some conditions will not be identified. In the general population this is a small percentage of those we routinely test. It may be these conditions are acquired after the screening or in the case of…... Read more
CRY Update Magazine 75
CRY Update 75 reports on all CRY news, events and fundraising from January to April 2018. We experienced a host of highlights through this four-month period. In March, our screening programme surpassed a total of 150,000 young people screened, which is an incredible milestone for us to reach. Furthermore, to discuss our progress and the…... Read more
Sudden Cardiac Death In Elite Footballers “Higher Than Anticipated”
• One in 50 players had a heart abnormality that needed ongoing monitoring • Almost three quarters of footballers diagnosed were able to return to play • The FA continues to provide vital insight into screening policy in sport and has invested more than £3.1 million into its screening programme After a heroic effort in…... Read more
CRY Heart of Durham Walk - Registration now open!
The annual CRY Heart of Durham Walk offers the opportunity to show support for CRY, remember young people and help raise awareness of young sudden cardiac death. We are immensely grateful to the families, treat some of whom take part every year. When and where is it? Saturday 6th October 11:00am, participants can arrive from 9:30am. The route…... Read more
World Health Organization recognises Young Sudden Cardiac Death...
This week we saw one of the most important steps in our campaign to prevent Young Sudden Cardiac Deaths. For the first time, causes of death including SADS, ARVC, Short QT (alongside Long QT, Brugada and hypertrophic cardiomyopathy) are now being recognised by the World Health Organization (WHO). The WHO has just released the ICD…... Read more
The critical issue of family screening
The critical issue of family screening – Alison’s Column Update 74 In 1995 when I started taking calls – nearly always from distraught mothers after the sudden death of their child – one of the most important things I knew that I needed to clarify was whether they had any other children because of the risk…... Read more
CRY’s Research Programme by Dr Steven Cox
In the UK, CRY are best known for raising awareness of cardiac conditions in young people, for the support we offer to those who have been affected, and for the cardiac screening services we offer to all young people. Throughout the rest of the world we are better known for the research we are publishing,…... Read moreFundraising
CRY Heart of Durham Walk – Registration now open!...
The annual CRY Heart of Durham Walk offers the opportunity to show support for CRY, remember young people and help raise awareness of young sudden cardiac death. We are immensely grateful to the families, treat some of whom take part every year. When and where is it? Saturday 6th October 11:00am, participants can arrive from 9:30am. The route…... Read more
London Landmarks Half Marathon – 24th March 2019...
The London Landmarks Half Marathon is a new, closed road central London run. It is the only half marathon to go through both the City of London and the City of Westminster. The event will take place on the 24 March 2019. 10,000 runners will start on Pall Mall, finish by Downing Street and have…... Read more
Virgin Money London Marathon – 28th April 2019...
The Virgin Money London Marathon is the largest annual fundraising event on the planet – runners have raised over £750 million for good causes since the race began in 1981. The course follows an iconic route taking in many of London’s landmarks, from the Cutty Sark and the City to St James’ Park and The…... Read more