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Support
After a young sudden cardiac death and for young people diagnosed with a condition
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Our Services
Support
The emotional impact of the sudden, seemingly inexplicable death of a young person on their family cannot be underestimated. CRY offers emotional and clinical support following a young sudden cardiac death.
Screening
Screening to identify young people at risk is cost-effective when conducted correctly - the conditions can be treated, securing a future for those identified. All young people should have the choice to be tested.
Research
CRY's research programme gives us unique access to general population-based data, enabling comparisons between athletes, ethnicities and gender. Better understanding of what is normal for young people, can better identify and treat those at risk.
Awareness
Awareness not only helps identify those at risk, but also ensures correct clinical practice when treating a young person with an inherited cardiac condition.
CRY's Vision
Preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families.
My story
My beautiful daughter Bethany aged 23 suddenly collapsed and suffered a cardiac arrest when she was in a nightclub in North Devon on 27th August (2017). We didn’t know Bethany had a heart condition since birth called ALCAPA (Anomalous left coronary artery from the pulmonary artery). The nightclub didn’t have a defibrillator and we will never know if one could have saved her life. Bethany leaves behind her 2-year-old daughter; I’m just heartbroken. I’m trying to raise awareness for all babies to be screened before leaving hospital as every babies heart matters. Screening should be put in to place...
Cardiac Screening
CRY offers subsidised ECG and Echocardiogram screening to all young people between the ages of 14 & 35.
There is a simple way to diagnose most cardiac abnormalities. This is by having an ECG (electrocardiogram) test. Results should be read by a cardiologist. For extra clarity an Echocardiogram (ultrasound scan) can also be done.If there has been a young (under 35) sudden death in the family, the family is entitled to be screened on the NHS.
All of CRY's public events are free to attend.
CRY International Medical Conference 2018...
Just as CRY’s screening programme continues to grow around the UK, so too does our standing in the medical community worldwide. Every year our International Medical Conference is a terrific event, giving our doctors an opportunity to present their latest research and for us to connect with other leading experts. 2018 was no different. Professor…... Read more
CRY Heart of Durham Walk 2018...
It’s hard to believe that we’ve been holding CRY’s Heart of Durham Walk for almost a decade – and we would once again like to thank all the CRY supporters who took part in our 9th annual Walk on Saturday 6th October. It really was a special event! A crisp Autumn day, the sun shone…... Read more
4-year-old daughter dies on holiday from undetected heart condition
5th October 2018 Meinir James describes the tragic death of her 4-year-old daughter Mali to an undiagnosed heart condition and her subsequent fundraising for CRY. Read mor... Read more
CRY parents recognised with Points of Light award...
Prime Minister Theresa May has recognised Mario and Debbie Dubois, from Manchester, for screening thousands of young people for heart conditions. They are the latest recipients of the Points of Light award, which recognises outstanding volunteers who are making a change in their community. Inspired by the life of their son Harry, who passed away from…... Read more
Simplyhealth Great North Run 2018...
Congratulations and a huge thank you to the 50 runners who took part in the Simplyhealth Great North Run for CRY on Sunday 9th September 2018. It was once again a lively event, living up to its billing as the world’s biggest half marathon. There were plenty of people out to show their support and…... Read more
Charlotte Receives New Heart After CRY Cardiac Screening
6th September 2018 Charlotte Carney spoke to Metro about her successful heart transplant after being diagnosed with Restricted Cardiomyopathy following a CRY cardiac screening. Read mor... Read more
Latest CRY Supported Research Highlights Importance Of Repeat Screening For Elite Competitive Athletes
Whilst the majority of people with cardiac conditions will be diagnosed following routine cardiac screening, we have always known that some conditions will not be identified. In the general population this is a small percentage of those we routinely test. It may be these conditions are acquired after the screening or in the case of…... Read more
Sudden Cardiac Death In Elite Footballers “Higher Than Anticipated”
• One in 50 players had a heart abnormality that needed ongoing monitoring • Almost three quarters of footballers diagnosed were able to return to play • The FA continues to provide vital insight into screening policy in sport and has invested more than £3.1 million into its screening programme After a heroic effort in…... Read more
World Health Organization recognises Young Sudden Cardiac Death...
This week we saw one of the most important steps in our campaign to prevent Young Sudden Cardiac Deaths. For the first time, causes of death including SADS, ARVC, Short QT (alongside Long QT, Brugada and hypertrophic cardiomyopathy) are now being recognised by the World Health Organization (WHO). The WHO has just released the ICD…... Read more
CRY’s Research Programme by Dr Steven Cox
In the UK, CRY are best known for raising awareness of cardiac conditions in young people, for the support we offer to those who have been affected, and for the cardiac screening services we offer to all young people. Throughout the rest of the world we are better known for the research we are publishing,…... Read moreFundraising
London Landmarks Half Marathon – 24th March 2019...
The London Landmarks Half Marathon is a new, closed road central London run. It is the only half marathon to go through both the City of London and the City of Westminster. The event will take place on the 24 March 2019. 10,000 runners will start on Pall Mall, finish by Downing Street and have…... Read more
Virgin Money London Marathon – 28th April 2019...
The Virgin Money London Marathon is the largest annual fundraising event on the planet – runners have raised over £750 million for good causes since the race began in 1981. The course follows an iconic route taking in many of London’s landmarks, from the Cutty Sark and the City to St James’ Park and The…... Read more