We understand that being young and suddenly finding that you need to be treated for a heart condition is not easy. CRY’s myheart network provides personalised help, support, and information to individuals who have been diagnosed with a life-threatening inherited or congenital cardiac condition.
myheart is a support system for individuals to help develop effective coping strategies and reduce social isolation. The network was developed in response to feedback from young people who found that support groups available were not effective in helping them deal with issues such as fitting of ICDs, pacemakers and undergoing ablation surgery.
We have dedicated resources for young people under the age of 35 who have been diagnosed with a cardiac condition, as well as information and support resources for anyone over the age of 18 who has been diagnosed with a cardiac condition when they thought that they were fit and healthy.
Currently myheart holds meetings twice a year in a central location for young people, between 14 and 35, who have suddenly been diagnosed with a life threatening heart condition. Anybody with a cardiac condition between the ages of 14 and 35 can come to the meetings if they have been offered or already have an ICD, have suffered a cardiac arrest, or have been diagnosed with an inherited or potentially inherited cardiac disease. Meetings are free to attend and give an opportunity to meet and discuss experiences in an informal but supportive environment.
Cost – £3,000 per meeting
Timeline – Twice a year
Help us fund projects like this. Your donation helps CRY’s work to save young lives and support families affected by young sudden cardiac death.
“The myheart network offers invaluable support and advice to young people who are faced with the tough and alarming hurdles of heart conditions”
Zenia Selby, myheart member
“The meeting was so uplifting and supportive, it was so humbling to meet so many other young people going through similar things to you”
Hannah Edwards, myheart member
To help fund or to find out more information about this project or any other of our projects, please contact Hidayet@c-r-y.org.uk.
