Due to the rapid expansion of CRY’s research and screening programmes, we are in need of purchasing a bespoke database, which will allow us to develop our important work.
This will be a cloud-based system enabling CRY to build on the success of our screening and research programmes and develop worldwide collaborations between international partners. The proposed new system will allow those wanting to be screened by CRY to register through our website and complete a medical questionnaire. Once the person has been screened by CRY, their Electrocardiogram and Echocardiogram results will then be uploaded onto this database and correspond with the correct details, making it easier for CRY’s Doctors to compare the results and their data. These results will also feed into the research database and enable CRY’s Research Fellows to browse patient archives and analyse data taken from these clinics, all in one place.
The benefits of streamlining our data by creating a far more efficient data flow, thereby reducing the amount of time spent by our research fellows inputting data, would have a huge impact on the cost-effectiveness of our programmes. This system could therefore allow CRY to screen even more young people meaning that we could identify more people with cardiac conditions, potentially saving young lives.
To minimise duplication and maximise co-operation amongst the Research Fellows it is essential to establish a database system with a hierarchical viewing and editing suite. This will enable all data to remain on one system whilst establishing the appropriate levels of confidentiality and personal security. This will allow us to foster the individual personal ambitions of the researchers balanced with the team achievements under the supervision of Professor Sanjay Sharma.
Cost – £90,000
Timeline – Ongoing
Help us fund projects like this. Your donation helps CRY’s work to save young lives and support families affected by young sudden cardiac death.
To help fund or to find out more information about this project or any other of our projects, please contact Hidayet@c-r-y.org.uk.
