Following the death of their father sisters Danii-Marie and Laura have undergone tests to see if they too have the hereditary heart condition. They were fitted with ICD’s in November 2000 and “haven’t looked back since”
They have since become members of the CRY SS Group for young people (under 35) who have had or are about to confront potentially life-saving surgery and want to talk to others who have been through a similar experience, including fitting of pacemakers, implantable defibrillators, ICD and ablation.
Land’s End to John O’Groats
Our route is as follows – we will be driving through, meeting up with as many Vdub Clubs and supporters as we can with press, radio and TV coverage at each stop raising awareness with CRY Teddy and QT Kanga
Fri 24 Oct Starting line at Beaulieu @10.30 am – Land’s End @ 6 pm
Sat 25 Oct Depart Land’s End @ 9.30 am – Worcester @ 5 pm
Sun 26 Oct Depart Worcester @ 9.30 am – Gretna @ 5.30 pm
Mon 27 Oct Depart Gretna @ 9.30 am – Loch Ness @ 5 pm
Tue 28 Oct Depart Loch Ness @ 8.30 am – Ullapool @ 11.00 am
Depart Ullapool @ 1.30 – John O’Groats @ 5.30 pm
Wed 29 Oct Depart John O’Groats @ 9.30 am – Kirkcaldy @ 6.00 pm
Thu 30 Oct Depart Kirkcaldy @ 9.30 am – York or Nottingham
Fri 31 Oct Depart York or Nottingham @ 9.30 am – Aldeburgh @ 5 pm
Sat 1 Nov Depart Aldeburgh @ 8.30 am – Leigh-on-Sea @ 11.00 am
Depart Leigh on Sea @ 12.15 pm – CRY Headquarters, Epsom @ 3 pm
Depart CRY @ 4.30 pm – Fleet Services 5.30 pm
Depart Fleet Services 6 pm – finishing line at Portsmouth FC @ 8 pm
Letter for support
Dear …………………………….
We are two very lucky sisters, affectionately known as the ‘Bionic Babes’ – please see our story enclosed – who are trying to raise money for a wonderful charity and to raise awareness of sudden death syndrome, in the hope that other families will not have to go through the trauma of losing a loved one. Especially when these deaths can so easily be prevented. Our aim is set out for you below.
For a period of one year our mum Julie has very generously donated use, and possibly abuse, of her highly cherished 1979, Type 2, Volkswagen Kombi. We intend to have it re-sprayed and have the CRY logo put on the front. We hope to collect a lot of celebrity autographs on the small red hearts enclosed, and to have them stuck onto the ‘Bionic Bus’. Mum will take the bus to as many shows and rallies as possible throughout the year and we will run a competition to guess how many autographs we will have by 31st December 2003
We would be grateful if you could sign the red heart for us using the enclosed permanent marker and also autograph both of the white labels together with a short “thought from the heart” underneath. These labels will be made into two books. One of these books will be presented to the winner of the competition and the other will be auctioned off with the highest bid being paid to CRY.
Oh, and because we are cheeky – let’s face it, we can now afford to be – we would also be very grateful if you would make a donation to the charity as well. Please return the heart, labels and donation – cheques made payable to CRY – to us at our Mum’s shop.
With Heartfelt Thanks, Danii-Marie (16) and Laura (13)
P.S. Please pass on any spare hearts to your celebrity friends….. Thanks.