Preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families.

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  • Support
    • After a Young Sudden Cardiac Death
      • Bereavement Support
      • Individual Support
      • Coroner
      • Coroner Inquest Support
      • Memorial Funds
      • My Story
    • Living with a condition
      • myheart – Support Network
  • Cardiac Screening
    • Frequently Asked Questions
  • Research
    • CRY’s Research
    • Research Fellows
    • Research Fellowship Grants
    • CRY Cardiology Conference
  • Medical Information
    • Resources for GPs
    • Sample ECGs
    • myheart – Support Network
  • Fundraising
    • Become a CRY Fundraiser
    • Fundraising Hub
    • Fundraising FAQ’s
    • Find an Event
    • Upcoming Supporter Led Events
    • Event Write Ups
    • Memorial Funds
    • Proceeds to CRY
  • Awareness
    • Ambassadors
    • In the Media
      • National News
      • Regional News
    • CRY Press Office
    • CRY Press Release
    • Volunteer for CRY
    • Patrons
  • About Us
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50 MPs came to the charity’s first ever ‘drop in’ session, held at Portcullis House, hosted by long term supporter of CRY and Chair of its All-Party Parliamentary Group [APPG], Kevan Jones MP. 

Kevan first became involved with CRY following the sudden death of the son of his friend, Jeff Morland. Levon was aged just 22 when he died from a condition known as Wolff-Parkinson White (WPW), in 2002.

Speaking after the event, Kevan Jones said; “Sudden cardiac death is a terrible tragedy to be inflicted upon any family, and one that can be prevented by giving every young person the opportunity to have their hearts tested.”

Following the success of the event the number of MPs who have now signed up to CRY’s #MPSupport4CRY currently stands at 171

Ruth Cadbury MP
Ruth Cadbury MP
Mark Tami MP
Mark Tami MP
Matt Rodda MP
Matt Rodda MP
Mohammed Yasin MP
Mohammed Yasin MP
Sheryll Murray MP
Sheryll Murray MP
Kevan Jones MP
Kevan Jones MP
Owen Paterson MP
Owen Paterson MP
Craig Mackinlay MP
Craig Mackinlay MP
Desmond Swayne MP
Desmond Swayne MP
Simon Hart MP
Simon Hart MP
Stephen Metcalfe MP
Stephen Metcalfe MP
David Hanson MP
David Hanson MP
Christina Rees MP
Christina Rees MP
Andrew Percy MP
Andrew Percy MP
Ian Lucas MP
Ian Lucas MP
Ian Mearns MP
Ian Mearns MP
Laurence Robertson MP
Laurence Robertson MP
Albert Owen MP
Albert Owen MP
Chris Stephens MP
Chris Stephens MP
Graham Jones MP
Graham Jones MP
Luke Hall MP
Luke Hall MP
Dr Julian Lewis MP
Dr Julian Lewis MP
Liz Twist MP
Liz Twist MP
Pete Wishart MP
Pete Wishart MP
Jonathan Edwards MP
Jonathan Edwards MP
Yvonne Fovargue MP
Yvonne Fovargue MP
Kevin Hollinrake MP
Kevin Hollinrake MP
Mike Gapes MP
Mike Gapes MP
Craig Whittaker MP
Craig Whittaker MP
Neil Parish MP
Neil Parish MP
Lisa Cameron MP
Lisa Cameron MP
Andrew Gwynne MP
Andrew Gwynne MP
Chris Pincher MP
Chris Pincher MP
Nigel Dodds MP
Nigel Dodds MP
Laurence Robertson MP
Laurence Robertson MP
Sir Mike Penning MP
Sir Mike Penning MP
Patricia Gibson MP
Patricia Gibson MP
Gerald Jones MP
Gerald Jones MP
Sir David Amess MP
Sir David Amess MP
Kate Hollern MP
Kate Hollern MP
Craig Tracey MP
Craig Tracey MP
Pat McFadden MP
Pat McFadden MP
Mark Menzies MP
Mark Menzies MP
Matt Rodda MP
Matt Rodda MP
Rachael Maskell MP
Rachael Maskell MP

Chief Executive of CRY, Dr Steven Cox, commented; “It was very encouraging to welcome so many MPs to our event at Portcullis House and to update them on our campaign. Many of the MPs talked about the impact young sudden cardiac deaths have had on their constituents and the communities they represent. Some had very personal stories of the devastating impact of these tragedies.

“We are continuing to urge all MPs to help establish a national strategy for the prevention of young sudden cardiac death to ensure the government acts to prevent the hundreds of deaths of young people each year from these undiagnosed cardiac conditions.” 

Every week, 12 apparently fit and healthy young (aged 35 and under) people in the UK die suddenly from an undiagnosed heart defect. In 80% of these cases, there will have been no signs or symptoms until it is too late, which is why CRY believes screening is so vitally important. Any person aged 14-35 can go to www.testmyheart.org.uk to book an appointment for a free heart screening which includes an ECG. CRY also provides the follow up ultrasound test on the same day. CRY now tests around 30,000 young people each year and well over 190,000 since the screening programme was launched in 1995.

The event was set against the controversial backdrop of the recent news that a revised consultation document from the National Screening Committee (NSC) is set to recommend ‘against’ screening for the risk of sudden cardiac death in the young. 

Dr Cox says, “Whilst progress is being made to save young lives, this latest NSC consultation document is very disappointing. It FAILS to demonstrate the impact of young sudden cardiac deaths on our society and does not objectively evaluate the overlap between the current routine use of the ECG in the NHS / medical practice for general diagnostics and monitoring, and its role in cardiac screening. Furthermore, it FAILS to stress that 1 in 300 people screened have a cardiac condition that can benefit from treatment or lifestyle advice.

“As a progressive society it cannot be acceptable that WE FAIL to act in response to the horrendous impact these conditions have on the family, friends and fabric of our local communities when left undiagnosed”.

CRY will be providing an official response before the deadline of 7th September 2019.

Preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families.

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Unit 1140B, The Axis Centre,
Cleeve Road, Leatherhead,
Surrey KT22 7RD

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