Heart charity support thrills Joanne

A young mum and dancer with a rare heart condition has raised £400 for charity.

Professional dancer Joanne Urch, who was diagnosed with the condition a year ago – only to discover that her four-year-old son also has it – organised a fun late-night fundraiser for CRY (Cardiac Risk in the Young).

Joanne, from Chelston, was diagnosed a year ago with Long QT Syndrome, which can cause sudden death in fit and healthy young people.

The news got even worse when tests on her son Tyler showed that he also suffers from the condition.

The fun night out raised £400 and is part of Joanne's mission to collect thousands for the charity.

She is also planning a nine-day trek across the Sahara Desert.

Joanne said: "People were all so kind and interested in the charity, particularly because it can affect any of us who have young family and loved ones.

"Al the girls were amazing, so a big thank-you to them."

Tyler's school buddies at Sherwell Valley Primary School have also done their bit. They collected a massive £213, and Joanne said: "Bless them all.

"I'd love to say a huge thank-you to them all for helping me – it really means so much."

Joanne's next fundraising event will be a concert at the Redcliff Hotel in Paignton on August 8, featuring TV actress Rebekah Gibbs.