Nantwich woman campaigns for awareness of sudden cardiac death following brother's death

A lack of routine medical checks is costing lives. Reporter Rhiannan Cooke investigates a syndrome that is killing younger people and talks to a Nantwich woman who is trying to do something about it after losing her brother 25 years ago.
Barry Nivett was just 28 years old when he collapsed and died during a football kick-about with his mates.
He was an apparently fit young man who had a passion for sports and had no diagnosed health problems.
Shockingly, a dozen people under the age of 36 die in similar circumstances every week from heart problems known as SADS (sudden arrhythmic death syndrome).
Barry's official cause of death was from myocardial and coronary problems.
His younger sister, Jenny Tyler from Nantwich, became involved with the charity CRY – Cardiac Risk in the Young – after his death.
She has since taken part in a number of fundraising events to help raise awareness of the condition.
CRY recently marked its 15th anniversary and is launching a pioneering initiative to offer free screening to 14-year-olds.
It is only available in the South East of England at present but it plans to go nationwide once it has the funds to roll it out across the country.
The non-invasive cardiac screening is the only way to determine if a young, healthy person has a hereditary heart defect that could cause sudden death.
Jenny said: "My family found out about CRY ten years ago and has since helped to fundraise to ensure that more people know the facts.
"Barry had absolutely no medical reason to visit the doctors but, if he had done, his death might have been prevented.
"I think there is a lack of awareness. If you take my brother's case, there was a whole list of things he could have done that could have detected his condition.
"A simple check-up could have revealed the problem."
Jenny recently took part in the charity's annual event, the Heart of London Bridges Walk, which raises money to help fund services such as counselling and support for families affected and medical research.
Jenny said: "My family and I participated to raise awareness but to also mark the 25th anniversary of my brother's death.
"We go around in a bubble sometimes thinking we're the only ones that it's happened to.
"But we're lucky in a way because he died doing what he enjoyed."
Participating in sport activities, although not the cause of sudden cardiac death, can often by the catalyst in highlighting undiagnosed conditions.
Jenny added: "Barry's death has made me wary of friends and family members who are taking part in sport activities.
"I'm always asking them to go to the doctors and get checked out before they take part in anything major because it could save their life by detecting an undiagnosed condition."
Jenny has so far raised more than £1,000 and has climbed Snowdon and taken part in Run Halton, a five-mile run across Runcorn Bridge in aid of the charity.
She said: "Taking part in the London race would have been something that I think Barry would have wanted to do as well – because he was so active.
"Emotionally and physically I didn't think I'd be able to do it but thinking of him managed to fill my tank with energy."
To donate on Jenny's fundraising page, visit
More information about CRY can be found at