Parent's battle to get killer syndrome recognised

A grieving mother is determined to

increase public awareness of the rare conditions which if undetected can

lead to sudden cardiac death or sudden adult death syndrome, which she

believes killed her son.


Wall is still distraught over the death of her son Craig, 26, who died after

falling out of bed, having possibly suffered a heart attack.


has joined the charity Cardiac Risk in the Young (CRY), which supports the

relatives of those who have died in this unusual way.


group faces an uphill struggle in getting the syndrome officially recognised

which is why Mrs Wall has gone public with her story.


had told her they could not determine the cause of Craig's death, so an open

verdict was recorded at his inquest. This left Mrs Wall devastated but

determined to fight on..

"The pain and

torment of not knowing how your child has died is indescribable, unless you

experience it for yourself," she said.


you have, you can't begin to tell anyone how you feel inside on hearing that

your child has died for no cause.


had never heard of sudden adult death syndrome. We will not get over this,

but we can try to change the future so other youngsters can live longer."


was contacted by CRY and met North Wales and Chester representative Doreen

Harley, whose daughter Lisa Jane Browne died in her sleep in January 1998. She worked as a children's nurse at the Countess of Chester hospital.


is a belief that the syndrome is hereditary and Mrs Wall is going to be screened

for possible signs of any genetic malfunction.


am going down to St George's Hospital in London in February for screening, which

is available through your own GP or CRY.


is a killer of our young people and happens without us knowing if we have the

gene or not. But families can be screened to determine if they have

it. Why wait until it happens to you? Do it now," she added.


Wall will start fundraising in Craig's memory next year to help CRY buy all the equipment

possible to help families have screenings.


(ECG) screenings test for the electrical conduction pathways around the heart

and Echocardiograms (Echo) look at the structure of the heart and valves.


is advisable if there has been any sudden deaths in your family, or any young

person suffers breathlessness, palpitations, dizziness, fainting or blackouts.