
Read Update 43 online here. The CRY Update is the charity’s newsletter, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.

Read Update 43 online here. The CRY Update is the charity’s newsletter, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.

Read Update 65 online here. The CRY Update is the charity’s newsletter, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.

It’s hard to believe that we’ve been holding CRY’s Heart of Durham Walk for almost a decade – and we would once again like to thank all the CRY supporters who took part in our 9th annual Walk on Saturday 6th October. It really was a special event! A crisp Autumn day, the sun shone on

Over 300 CRY supporters took part in the 7th CRY Durham Riverside Walk on Saturday 1st October 2016. Thank you to everyone who attended and helped to make the day so special. This year, for the first time, permission had been obtained for a new route which included Durham’s historic city centre. It was, as always,
Read Update 45 online here The CRY Update is the charity’s newsletter, published three times a year, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.
Read Update 46 online here The CRY Update is the charity’s newsletter, published three times a year, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.
Read Update 47 online here The CRY Update is the charity’s newsletter, published three times a year, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.
Read Update 48 online here The CRY Update is the charity’s newsletter, published three times a year, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.
Read Update 49 online here The CRY Update is the charity’s newsletter, published three times a year, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.
Read Update 50 online here The CRY Update is the charity’s newsletter, published three times a year, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.
Read Update 51 online here The CRY Update is the charity’s newsletter, published three times a year, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.
Read Update 53 online here The CRY Update is the charity’s newsletter, published three times a year, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.
Read Update 54 online here The CRY Update is the charity’s newsletter, published three times a year, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.
A record number of participants, 286 in all (along with several 4-legged friends, some in CRY T-shirts or customised CRY neckerchiefs) took part in the 5th CRY Durham Riverside Walk on Saturday 4th October 2014. Since 2010 the Durham Walk has flourished with a record number taking part this year. Our thanks to everyone who could

Congratulations and a huge ‘thank you’ to the 51 runners, including CRY Patron Matt Wells, who took part in the BUPA Great North Run in aid of CRY on Sunday 7th September 2014. This year’s race saw over 56,000 runners take part in a very historic year for the event, seeing its one millionth finisher! Once
Read Update 56 online here The CRY Update is the charity’s newsletter, published three times a year, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.
Read Update 57 online here The CRY Update is the charity’s newsletter, published three times a year, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.

Read Update 59 online here The CRY Update is the charity’s newsletter, published three times a year, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.
23rd September 2007 The Unipres Golf Society had a charity golf competition at Maften Hall in Northumberland in aid of CRY and for the Kasia Ber Memorial Fund. They raised £305 and all of the lads had a great day out. The competition was won by Mark Canning (on the left in the picture) and the
September 2007 Denise Gutcher did a sponsored “Stop Smoking” – she has done fantastically, well done! She raised £362 in memory of ‘Kasia Ber’ £50 from ‘Biceps Gym’ £50 from ‘Geordies Pizza’ £262 from the people and businesses of Horden Thank you all. John, Diane and Christopher Ber
14th – 15th July 2007 The Three Peaks Challenge involves walking and climbing the three highest peaks in Britain. The three peaks are, Ben Nevis in Scotland, Scafell Pike in England and Mount Snowdon in Wales. The challenge is to climb the three peaks in a time of under 24 hours. The time starts at the
On the 14th of January 2007, I’m delighted to say that I managed to complete my own personal challenge that I set myself to raise money in memory of my good friend Kasia Ber. I went through three and a half weeks of hard gym swimming training, which was extremely tiring but it was worth it.
I arranged a charity night to take place on the 1st February for my best friend Kasia Ber who died just over two years ago. Kasia was very dear to everyone because she touched every person she knew in one way or another. Everyone I know adored Kasia because she was a bubbly, funny, adorable person.
Congratulations and thank you to the 144 participants (plus dogs in CRY t-shirts!) who took part in the 2nd CRY Durham Riverside Walk on Saturday 8th October 2011 to launch CRY Awareness Week ( 8th -16th October). The numbers taking part this year were more than double those of 2010, thanks to the efforts of our
F.C. Easington held a charity match and fun day on Sunday 5th August this year to raise funds in memory of Kasia Ber. They raised a wonderful £266.50 in her memory. “Please accept a cheque of £266.50. This was raised by F.C. Easington who held a football match. The day went really well with a great

Read Update 62 online here “Traditionally we have found that the last few months of the year are a very busy time, often with several major fundraising and raising awareness activities taking place. September finds our runners busy in the Great North Run and Run to the Beat events; whilst in October our annual Durham Riverside
Read Update 60 online here The CRY Update is the charity’s newsletter, published three times a year, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.
December 2006 John and Diane Ber appear on ITV Tyne Tees News talking about the loss of their daughter Kasia
Congratulations and thank you to the 152 participants (plus dogs in CRY t-shirts!) who took part in the 3rd CRY Durham Riverside Walk on Saturday 6th October 2012, on one of the sunniest and warmest autumn days this year. The numbers taking part this year were slightly above those of 2011, thanks to the efforts of
Our Kasia Our darling daughter is now not here, And every day we shed a tear, Hoping and praying that she is near, Most of our days are so hard to bear, Knowing that she is now not there. We miss her laughter, fun and singing, And all the joy she would be bringing, I hear
Long QT syndrome occurs due to abnormalities in cardiac sodium and potassium ion channels that result in a propensity to fatal ventricular arrhythmias. Ventricular arrhythmias are precipitated by stimuli that involve the production of adrenalin, such as physical exercise (long QT type 1); fear or sudden or loud auditory noises – as in Kasia Ber’s case
Statement by Mr and Mrs Ber – Inquest into the Sudden Death of their daughter Kasia – 30th November 2006 Mr and Mrs Ber attended the inquest into the death of their late daughter, Kasia, today. Their daughter died of Sudden Adult Cardiac Death Syndrome (SADS), often known as sudden cardiac death. Mr and Mrs Ber are still
Congratulations and thank you to the 218 participants (and some four-legged friends in CRY t-shirts!) who took part in the 4th CRY Durham Riverside Walk on Saturday 5th October 2013 on another mild and sunny day. The event has grown steadily since 2010 and the numbers taking part this year were the most ever. As in
We held a Hawaiian theme garden party on the 4th of July to raise awareness and funds for Kasia’s memorial fund within CRY. If it was not for CRY, we would not have known why our beautiful Kasia died. We held this event in our own garden as this is where our Kasia grew up and
F.C. Easington held a charity match and fun day on Sunday 5th August this year to raise funds in memory of Kasia Ber. They raised a wonderful £266.50 in her memory. “Please accept a cheque of £266.50. This was raised by F.C. Easington who held a football match. The day went really well with a great

Read Update 52 online here The CRY Update is the charity’s newsletter, published three times a year, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.
A charity fund set up in memory of a teenager who died of a rare heart condition has topped the £20,000 mark. Kasia Ber was just 17 when she died after her mobile phone alarm triggered an undiagnosed condition that caused her to have a heart attack. It was later found she died from the rare
A teen singing sensation joined MPs to celebrate the anniversary of a national charity during a parliamentary reception. Easingham MP Graham Morris and Sedgefield MP Phil Wilson were joined by singer Pixie Lott who was at the Houses of Parliament to celebrate the 15th anniversary of the national charity, Cardiac Risk in the Young (CRY). CRY
For decades, a stiff upper lip was how Britons were expected to deal with the death of loved ones. As a society, we’re finally starting to let our feelings show, says Charlotte Philby. More than four years have passed, but for Diane Ber the events of 27 December 2005 are still as raw as they ever were. That
I held a coffee morning on the 11th September, raising £206.00 and awareness for CRY. It was only 2 days before when it was decided to hold this event and my mam got cracking with her lovely cakes. Many friends and neighbours popped in and out and they all enjoyed a chat as this was held
Every week 12 young people aged between 14 and 35 drop dead from heart attacks. Although fatal heart disorders are usually associated with overweight people in their ‘sunset years’, they can also strike people in the prime of life, leaving their families in shock over their sudden, premature death. Sudden Death Syndrome is an umbrella terms
Families from the North East of England gathered together on Saturday 2nd May to help launch CRY’s new ’12 a week’ postcard campaign in their area of the UK. This was the fifth such regional launch of the new postcard campaign, following on from launches in the North West, Midlands, Northern Ireland and South East. The
A sponsored coast to coast bike ride took place on the 2nd May 2009 Our close friend Jeff Kinkade presented a cheque of a fantastic £1, 635. Jeff and his friends started from Cumbria and rode to Tynemouth – and the weather stayed good for them. The money raised will go to our daughter Kasia’s memorial
29th June 2008 Dawn Sanderson and Mark Brown participated in the Great North Walk at Herrington Park, Sunderland, to raise money for CRY in memory of Kasia Ber. “We both enjoyed this event very much and raised £150 for a good cause.”
A loving dad is calling for all children to be given life-saving health checks after losing his 17-year-old daughter to a rare heart disorder. Kasia Ber died suddenly when a mobile phone alarm triggered an irregular heart rhythm, caused by the congenital condition Long QT Syndrome, in December 2005. Her devastated father John now wants electro
The parents of a tragic teenager who died from a rare heart defect have won support from Parliament in their fight to make a change in the law to prevent any more ‘needless’ deaths. John and Dian Ber, of Brier Avenue, Hoarden, have been campaigning since their 17-year-old daughter Kasia died after suffering a heart arrhythmia,
On December 26th, eighteen of us braved the freezing temperatures of the North Sea in memory of Kasia, at the annual Boxing Day Dip Although the water was cold, we all did Kasia’s memory proud. All in all, a great amount of £836.80 was raised for CRY, and we intend to make braving the cold a
Read Update 44 online here The CRY Update is the charity’s newsletter, published three times a year, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.
A rare heart disorder is still claiming the lives of young people, despite moves by the NHS to tackle the problem. The so-called Chapter Eight – designed to act as a model for best medical practice – is not working as intended, according to Dari Taylor, MP for Stockton South and a former Sunderland city councillor.
An MP says a rare heart disorder is still claiming lives despite new NHS guidelines. Stockton South MP Dari Taylor, supported by Durham North MP Kevan Jones, led the way on calls for more screening of at-risk youngsters by introducing a Private Member’s Bill – Cardiac Risk in the Young (Screening) Bill – in 2004. The
The heartbroken parents of Kasia Ber have launched a campaign to stop other families losing loved ones to rare heart conditions. An inquest heard how 17-year-old Kasia had a condition known as Long QT syndrome and may have died last December after being startled by her mobile phone ringing, having suffered a heart arrhythmia brought on
A mobile phone alarm killed a 17-year-old girl who had an undiagnosed heart condition, her father said yesterday. Kasia Ber died in bed at her parents home in Horden, Co Durham, on December 28 last year. Subsequent tests showed she was suffering the genetic disorder Long QT syndrome, which can be treated with beta blockers. Her
A teenager was literally scared to death by the sudden ringing of her mobile telephone, an inquest was told yesterday. It rang with an alarm call at 7am and Kasia Ber, 17, was so startled it triggered heart failure. Unknown to anyone, she was suffering from a coronary condition in which attacks can be triggered by
A family is calling for more research into sudden death among young people as it claims a mobile phone ring may have sparked their daughter’s death Kasia Ber, 17, who had an undiagnosed heart problem, died in bed at her parents’ County Durham home last year. Click here to read this article in full
A teenager’s sudden death from an undiagnosed heart complaint has made her family determined to ensure others do not suffer their loss. Kasia Ber, 17, died at her home in Brier Avenue, Horden, East Durham, on the morning of December 28, last year. It was only discovered after she died that she had been suffering from
Our wonderful local Horden Rugby team held a memorial match in memory of our beautiful Kasia. Although very emotional, we felt so proud that they did this and what a great bunch they are – and also the Seaton Carew team for taking part. Both teams played great, I have never been so interested in rugby.
A fantastic cheque of £858 has been forwarded to CRY for Kasia’s Memorial Fund. Christopher Worrall ran the Great North Run in memory of our precious Kasia, who died from the genetic heart condition Long QT when the sudden noise from her mobile phone alarm killed her. Christopher did the run in one hour forty minutes,
A Halloween disco was organised by Kasia’s friends and family in our local Rugby club. Although we still were not strong enough to attend, the evening went really well. A wonderful £700 was raised for Kasia’s memorial fund, from all the people who love and miss her. We would like to thank everyone involved and all
Inquests In this area you will find information about Inquests that CRY families have been through. Inquest into the death of Kasia Ber November 2006 Inquest into the death of Lisa Jane Browne re-opened April 2006