Taking part in research

Everyone who is screened by CRY also helps to further CRY’s research efforts – increasing our understanding of the conditions and ultimately helping to reduce the number of young sudden cardiac deaths.

What happens to my results?

The information from the tests is strictly confidential and will not be disclosed to anyone other than yourself (or your guardian if you are younger than 16 years), your GP and others who are directly involved within your care, e.g. other consultant cardiologists.

CRY’s screening programme is about identifying people at risk. However, it is also about building our understanding of these conditions. Every person we test will not only receive advice from a leading world expert in these cardiac conditions affecting young people but also they will make a real contribution to our understanding of these conditions in the future.

The information from these tests will be held on a database at CRY, assuming consent has been given, and may be used anonymously for research purposes.

CRY’s screening research programme is overseen by Professor Sanjay Sharma. Sanjay is Professor of Inherited Cardiovascular Disease and Sports Cardiology at St George’s University of London, and Medical Director of the Virgin London Marathon. In 2008 he was voted, as the only British Representative, onto the European Association for Cardiovascular Prevention and Rehabilitation (EACPR) Sports Cardiology Section Nucleus, an elite committee tackling the complex issues of sports cardiology.

CRY actively promotes research in the field of inherited cardiac diseases, sudden cardiac death, screening and sports cardiology in an attempt to advance our understanding of conditions predisposing to sudden cardiac death and prevent further tragedies. CRY sponsors competitive research grants for outstanding individuals who wish to specialise in this field and has contributed to numerous abstract presentations in national and international medical conferences as well as publications in distinguished journals.

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